Tag Archive | disability awareness

MY TALL SHIPS RACE JOURNAL DAY 8 – (11/07/2015) – Sunshine, oil rigs and making sense of spaghetti!

This is the last entry I have to make using my phone to record my journal.  The sea sickness is subsiding and I am beginning to feel I can go back to writing my journal in my penguin pad.  It is a great feeling when sea sickness subsides, you suddenly feel normal again and wonder how you survived the days you did with feeling so sick.  The woozy head has gone, the constant nauseous feeling has gone, and I am feeling so much better.  The recording today started with this conversation between me and hubby

Me – “I can’t remember what we did today.  What did we do today?”

Hubby – “What did we do today!  Got up.  Went out set some sails.  Had breakfast.  Set more sails.  Came back, had a talk.  Had dinner.  Went on watch.  Did some shopping. Came back to the cabin”

Me – “There you go, you summed it up nicely I don’t need to do my blog now!”

I still had to do my blog though, the journal would not have been complete with so little information in it.  So I continued to record the following on my phone. Continue reading


Unlock the Mind


I decided to join up with the Writing 101 course to help develop my skills in blogging.  I want to learn a bit more, want to improve on my writing skills and share my work with like minded others.  Due to being busy I have only just read the first email that came through from Writing 101 and it was about free writing for 20 minutes.  Mind block already.  Continue reading

Wednesday’s Word – Bugbear


Noun: (buhg-bair)

  • any source, real or imaginary, of needless fright or fear.
  • a persistent problem or source of annoyance.
  • Folklore – a goblin that eats up naughty children.


C16: from bug + bear

1580s, a sort of demon in the form of a bear that eats small children, also“object of dread” (whether real or not), from obsolete bug “goblin,scarecrow”


What had once been a bugbear was now a bullish sign of growth.

My Thoughts:

Continue reading

Cancelled plans and the art of saying “no!”


Today I had to let someone down.  It is not something I like doing, nor something I take pride in, it simply is just something that goes along with the territory of living in chronic pain.

Over the last few weeks I have been unwell with other issues alongside the CRPS and Fibromyalgia.  Issues that are no doubt linked to both of these but still need investigating by the medical profession.  During that time I have continued to try to live life the way I have done for the last number of years, attempting to ignore the pain and these additional issues – believing that I could pace myself as I usually do, managing the pressures of everyday life without having any more of an adverse effect on me than usual.  WRONG! Wrong! So very, very wrong! (shakes head at my own stupidity).   Continue reading

Spoons, Beans and the Science of Crash Calculations!

I have mentioned the Spoon Theory before, however I came across this lovely little visual piece that uses beans.  Although the writer of this piece mentions CFS this can be applied to other medical conditions such as CRPS, Fibromyalgia, etc. too.   Continue reading

“I’m Sorry” On Repeat: Apologizing for our Chronic Illness and Pain by Life in Slow Motion

This brilliant piece of writing by Life in Slow Motion explains perfectly the phenomenon of feeling the need to apologise all the time for our chronic pain and illness. Continue reading

How would you feel if the shops were closed!


This is a little concerning.  It is bad enough already trying to get an accessible space without this bus ruling having an effect on parking too! I think the judge had limited knowledge of the effect this ruling will have on disabled people in general and I still believe that everyone should undergo some sort of disability awareness training to make them aware of the issues faced by disabled people on a daily basis. Maybe if this judge had tried accessing public transport using a wheelchair then maybe the outcome of the case would have been different.

Continue reading