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Cancelled plans and the art of saying “no!”

Tired-of-being-tired

Today I had to let someone down.  It is not something I like doing, nor something I take pride in, it simply is just something that goes along with the territory of living in chronic pain.

Over the last few weeks I have been unwell with other issues alongside the CRPS and Fibromyalgia.  Issues that are no doubt linked to both of these but still need investigating by the medical profession.  During that time I have continued to try to live life the way I have done for the last number of years, attempting to ignore the pain and these additional issues – believing that I could pace myself as I usually do, managing the pressures of everyday life without having any more of an adverse effect on me than usual.  WRONG! Wrong! So very, very wrong! (shakes head at my own stupidity).   Continue reading

Spoons, Beans and the Science of Crash Calculations!

I have mentioned the Spoon Theory before, however I came across this lovely little visual piece that uses beans.  Although the writer of this piece mentions CFS this can be applied to other medical conditions such as CRPS, Fibromyalgia, etc. too.   Continue reading

Flares and Pacing

To flare, or not to flare

No I am not on about the types of flares you find on a boat for sending up in times of distress, although they might come in handy because having a flare feels like you are sinking!  I am talking about the distressful type of flare that everyone with chronic pain can relate to –  Continue reading

Christmas, Chronic Pain and Spoons

spoons

I love Christmas.  I love the sparkling lights, the fragility of glass baubles, the ancient decorations that are older than me, the tradition of decorating the tree or in my case trees!  I also like the moments of reflection – good or bad experiences that have come before, thinking how grateful I am for what I have, thinking about my family and fun times, and all the great memories Christmas invokes.  I also now think of what I could do at this time of year prior to 6 years ago and what I can (or rather can’t) do now.

Continue reading